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Last Thursday riders from the 32nd PKRF Charity Race, that will take place on Saturday 29th April,  were invited to Tallaght Hospital where they were met by Dr. Catherine Wall, Renal Physician.

The group visited the Heamo Dialysis Unit and had the opportunity to chat with some of the patients there. They got to see and hear about life on dialysis and the restrictions and limitations that go with that. This first hand experience was an amazing insight to how their fundraising efforts are making a huge difference.

James Nolan, Chairman, Punchestown Kidney Research Fund spoke about his own experience on dialysis, receiving the Gift of Life from his sister Catherine and on to riding in the PKRF Charity race at Punchestown. Here is a brief summary of what PKRF Charity Race organiser James Nolan and his team have managed to achieve in the past 18 months:

  1. Continued research into Polycystic Kidney Disease in partnership with the Irish Nephrology Society under the guidance of The Irish Research Council.
    2. Support Art Therapy programs for Dialysis Patients in Tallaght & Waterford Dialysis Units.
    3. Support Sports Program for Dialysis & Transplant Patients.
    4. Organised trips to Lourdes for Dialysis patients.

In 2022, the PKRF partnered with the Irish Kidney Association to set up a Pilot Peer Support Programme to help kidney patients and their families. This support network is for patients and their families who are starting out on the road to dialysis or looking at the possibility of a life-saving kidney transplant. This support network enables people to reach out and connect with a trained volunteer to discuss their concerns about dialysis and transplantation.

Last year also saw the PKRF commence the James Tracy/PKRF Beam exercise & well-being programme for all kidney patients in Ireland.  Typically physical activity levels for kidney patients can be low with high levels of sedentary behaviour. The James Tracy/PKRF program enables kidney patients to access online, live and on-demand exercise classes. These classes can help improve the physical and emotional well-being of kidney patients as well as providing access to educational health videos and renal dietary advice which is so important for kidney patients.

The James Tracy/PKRF programme is suitable for patients at all stages of kidney disease including pre-dialysis, dialysis as well as transplant and is free for all kidney patients to use. We know this program will have an immediate positive effect of the lives of all kidney patients.

Ultimately the message from James Nolan, Chairman of The Punchestown Kidney Research Fund is to please have the conversation about Organ Donation with your family and loved ones.

See you at Punchestown. For further information please visit www.pkrf.ie

Follow on Instagram – @punchestownpkrf

 

 

 

“Have the conversation – say yes to organ donation”

 

PUNCHESTOWN  CHARITY RACE PILOTS PEER SUPPORT PROGRAM FOR PATIENTS.

Wednesday 20 April 2022: The 2022 Punchestown Festival will host the 31st running of the Annual Charity Race on Saturday 30th April in aid of the Punchestown Kidney Research Fund. (P.K.R.F.).

This fantastic fundraising initiative has stood the test of time and remains as popular as ever with applications oversubscribed each year. This year was particularly challenging with a much reduced preparation time but a huge effort by organisers and participants saw the plan come to fruition. The race involves 25 ‘amateur’ riders, battling it out over one mile and seven furlongs around the famous Punchestown course. Each rider must raise €1,500 for the P.K.R.F.  and pass an assessment in order to participate. 

In 2022, the PKRF is looking forward to partnering with the Irish Kidney Association to set up a Pilot Peer Support Program to help kidney patients and their families who are starting out on the road to dialysis or looking at the possibility of a life-saving kidney transplant.  This support network will enable people to reach out and connect with a trained volunteer  to discuss their concerns about dialysis and transplantation.

Kilcullen Butcher, James Nolan initiated both the charity and the race having received the GIFT OF LIFE when his sister Catherine Doyle donated one of her kidneys to him on the 25th July 1987. He has ridden in the race himself 13 times and won it on 50 to 1 shot Nero’s Dancer in 2002, an experience he describes as one of the highlights of his life.

The Punchestown Kidney Research Fund Charity Race was founded in 1990 and has raised €1.6 million to date.  They have invested these funds in projects that improve the quality of life for patients on dialysis, projects that establish ways to maximise the life span of the transplanted kidney and identify projects that examine the causes that lead to renal failure. Unfortunately, due to the Covid19 pandemic the race could not place in both 2020 and 2021. As a result, the PKRF had no major projects during this time but have supported the following projects from 2016 to 2019:

Leona Hughes, Punchestown Sponsorship coordinator explains why she is taking part in this year’s race “Whatever about challenging yourself I think this race makes you consider how lucky we are to be in a position to choose. There are plenty of people who would love to take part in something like this but unfortunately cannot due to illness. I hope we raise plenty of money for James and his team because the work they do is amazing. The atmosphere is always brilliant and we feel it is the most important race of the entire festival because it makes such a difference to so many lives”.

The Punchestown Kidney Research Fund uses the Charity Race as a major Organ Donor Awareness Event in Ireland.  Indeed the simple measure of carrying an Organ Donor Card or having the conversation about Organ Donation and informing one’s next of kin of one’s wish to donate organs can save someone’s life.

*ENDS*

For further information please contact: The Punchestown Kidney Research Fund 

C/o James Nolan – 086 2349919

Main Street, Kilcullen, co. Kildare